Jennifer Shanley of Rochester, New York, is on a journey to pinpoint the perfect cannabis strains to help her 22-year-old daughter Madeline. in September 2018, Madeline was struck with a sudden and mysterious illness that stole her life away abruptly. Once a college honors student at Nazareth College, Madeline was 100% bed-bound and in constant and excruciating muscle spasms.
After years of searching and financial hardships, a two-month stay at John Hopkins Hospital in Baltimore finally led to the diagnosis of Stiff-Person Syndrome or SPS, a rare one-in-a-million autoimmune and neurological muscular disorder. This is a painful story to share, but it’s also a story of Hope for Madeline and her family. You don’t want to miss this episode!
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Tenho SPS desde 2008. Até hoje tomo as medicações mais comuns (Baclofen e Diazepam).
Como vocês estão aplicando/administrando Cannabis em pacientes com SPS. Vocês tem algum contato aqui no Brasil?
Atenciosamente,
Fabio