Stiff Person Syndrome and Cannabis: Can it Help?
Could cannabis help stop the debilitating muscle spasms of Stiff Person Syndrome?
Jennifer Shanley of Rochester, New York, is on a journey to pinpoint the perfect cannabis strains to help her 22-year-old daughter Madeline. in September 2018, Madeline was struck with a sudden and mysterious illness that stole her life away abruptly. Once a college honors student at Nazareth College, Madeline found herself 100% bed-bound and in constant and excruciating muscle spasms.
After years of searching and financial hardships, a two-month stay at John Hopkins Hospital in Baltimore finally led to the diagnosis of Stiff-Person Syndrome or SPS, a rare one-in-a-million autoimmune and neurological muscular disorder.
This is a painful story to share, but it’s also a story of Hope for Madeline and her family. You don’t want to miss this episode!
Highlights from the conversation include:
- Why are they looking to cannabis for relief
- What SPS is and how it affects Madeline
- How the New York medical cannabis program failed Madeline
- What home cultivation means for patients like Madeline
- How could you possibly help Madeline
Do you have any information on genetics or cannabinoids that have helped with severe muscle spasms, neurological disorders, and or Stiff-Person Syndrome?
The Shanley’s have asked us to request from our community any information or even medical doctors to be sent to them.
You may email Jennifer Shanely at [email protected].
Fabio Almir GonçalvesOctober 20, 2022 at 5:02 pm
Tenho SPS desde 2008. Até hoje tomo as medicações mais comuns (Baclofen e Diazepam).
Como vocês estão aplicando/administrando Cannabis em pacientes com SPS. Vocês tem algum contato aqui no Brasil?
Pingback: S (News 2020-2022) – Granny Storm Crow's List